Hello,so i've been living with itp since i was seven.But ITP doesn’t OWN Me! I am now healing. Am I cured, you may ask? Probably – no, make that almost definitely – as long as my body’s healing system remains healthy. Why am I telling my story now? Maybe my experience can help someone else who’s just been diagnosed with the disease So what is ITP ? Itp is Idiopathic thrombocytopenic purpura is a bleeding disorder in which the immune system destroys platelets, which are necessary for normal blood clotting. Persons with the disease have too few platelets in the blood. Having a itp can seems like a roller coaster.If you a teenager just like me you know friends and peers are super important. Being “normal” matters a lot as they begin the transition to young adulthood.There will be those times when a friend will ask a pointed question about ITP, such as why he has to sit on the sidelines during a sport. Teen with ITP may experience many feelings, including anxiety, fear, depression and anger. And he may not want to discuss any of them.I still remember when i was seven my parents quickly took me to kpj damansara cause my platelets counts at that time was 10k gila kan ?But its okay don't be afraid.
No matter what the age, just know that none of you are alone!!! ITP can be very stressful at first. it does get easier once you become familiar with it. But please jangan terlau banyak fikir about this itp thing. Stressing out over it does not help. Try not to think about counts dropping, that only makes it worse for you mentally, which can make everything worse physically!
! I thought the same at first, but then realized that stressing out over something I have no controll over, was not helping. Alot of people do just fine with low #'s and only treat if they have symptoms. ITP can flare up at anytime no matter how long one has been in remission. I have had normal counts for almost 2 years. Do I think about "what if" counts drop again, sure do. But I do not let it worry me. I will cross that bridge if it should present itself again. Also, some of the symptoms I have/had are:
Tiredness
Headaches/Mirgranes
Dizzyness opon standing
Vomiting
Trouble sleeping
Mood swings
Memang gila but allhamdulilah maybe now im healing cause that kind of symptoms macam dah tak teruk like dulu-dulu,Yang paling teruk is when i have trouble with my sleeping its sucks lagi-lagi time sekolah.Ingat lagi selalu nangis sebab tak dapat nak tido So, from someone that has been there, please do not live in fear!!!If you're a muslim always remember Allah,zikir and etc.
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